What's on the web on your pursuit, hobbies, interests and worries

Porphyria news

Rare genetic variations may solve mystery of porphyria severity in some patients

Science Daily - Aug 10, 2016
An international research team has linked rare variations in a cell membrane protein to the wide variation in symptom severity that is a hallmark of porphyria, a rare disorder that often affects the skin, liver and nervous system. St. Jude Children's ...

Treatment of Porphyria cutanea tarda

News-Medical.net - Jun 24, 2016
Porphyria cutanea tarda (PCT) is a common form of hepatic porphyria characterized by symptoms such as fragile, blister-prone skin particularly on sun-exposed areas. The condition occurs due to an acquired or inherited deficiency in the activity of ...

Porphyria cutanea tarda

Nederlands Tijdschrift voor Geneeskunde - Jan 29, 2016
Porfyrieën vormen een klinisch en genetisch heterogene groep van relatief zeldzame metabole aandoeningen die voortkomen uit stoornissen in de haembiosynthese. Porphyria cutanea tarda (PCT) is de meest voorkomende variant en wordt onderscheiden ...

Porphyria - premium items on eBay



Relationships in Dermatology: The Skin and Mouth, Eye, Sarcoidosis, Porphyria (N


Relationships in Dermatology: The Skin and Mouth, Eye, Sarcoidosis, Porphyria (N


>> Go to all great Porphyria deals on eBay

Porphyria books

Porphyria: The Unknown Disease

by: Diana Deats-O'Reilly
A vital book to the countless number of people who suffer from the debilitating effects of the metabolic inherited disease Porphyria written in a non-medical terminology for both the patient and medical clinician.
>> More info on Amazon

The Porphyrians: A Story of Inheritance and Environment

by: G.K. Dean

>> More info on Amazon

The Official Patient's Sourcebook on Porphyria: A Revised and Updated Directory for the Internet Age

by: Icon Health Publications
This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to porphyria, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research.
>> More info on Amazon

The Porphyrias: A Story of Inheritance and Environment

by: G Dean

>> More info on Amazon

>> Go to all Porphyria books

Porphyria pictures on the web

>> Show

Porphyria videos

What is Porphyria? | Summer Shade Ep. 1

Porphyria J is a vlog devoted to creating community and awareness around Porphyria. Summer Shade is a 13 week series focused on living with EPP during the ...

Porphyria - Katy's Choice

Katy Green is a remarkable person. Doctors said she wouldn't survive. They said she would never have children. She is very much alive and a very proud ...

A Doctor suffers from AIP (Acute Intermittent Porphyria)

Physician, Dr Lisa Kehrberg suffers from (AIP) Acute Intermittent Porphyria.

Porphyria pathology

Porphyria is a metabolic disease in the synthesis of Heme. Heme is made up of a molecule of protoporphyrin plus an iron ion Fe(2 ). When the enzymes that ...

Exploration Health: Acute Intermittent Porphyria (AIP)

The newest media on Acute Porphyrias is a PBS documentary about AIP which features Dr. Lisa Kehrberg and porphyria experts Dr. Karl Anderson and Dr.