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Alnylam's Givosiran for Porphyria Patients Gets FDA Breakthrough Therapy Designation

Rare Disease Report - May 31, 2017
Givosiran is an investigational ribonucleic acid interference (RNAi) therapeutic targeting aminolevulinic acid synthase 1 (ALAS1) to prophylactically reduce porphyria-related attacks in patients with acute hepatic porphyria (AHP). AHP is a form of ...

Photosensitivity diseases: a review of sun-exposed skin rashes

Clinical Advisor - Jun 8, 2017
Two common types of porphyria with a significant photosensitivity component are porphyria cutanea tarda (PCT) and erythropoietic protoporphyria (EPP). These types of porphyria are described as nonacute because they manifest primarily as rashes onĀ ...

No fatwa to eat wife: How fake news mills are used to fan hatred for Muslims

DailyO - Jun 21, 2017
In Robert Browning's famous poem Porphyria's Lover, the lover kills the beautiful Porphyria to "give herself to me forever...I am quite sure she felt no pain" and later fondles her corpse. Common sense would otherwise make one doubt such news and forceĀ ...

Porphyria - premium items on eBay



Relationships in Dermatology: The Skin and Mouth, Eye, Sarcoidosis, Porphyria by


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Porphyria pathology

Porphyria is a metabolic disease in the synthesis of Heme. Heme is made up of a molecule of protoporphyrin plus an iron ion Fe(2 ). When the enzymes that ...

What is Porphyria? | Summer Shade Ep. 1

Porphyria J is a vlog devoted to creating community and awareness around Porphyria. Summer Shade is a 13 week series focused on living with EPP during the ...

Living with the Intense Pain of Porphyria

Rose and Colin discuss the painful, debilitating sysmptoms of porphyria.

Dr. Nilesh Patel - Acute Intermittent Porphyria

Dr. Nilesh Patel discusses Acute Intermittent Porphyria. You see lots of abdominal pain. Have you diagnosed AIP?

Porphyria - Katy's Choice

Katy Green is a remarkable person. Doctors said she wouldn't survive. They said she would never have children. She is very much alive and a very proud ...